Task Forces

  • United States of America
    • NHLBI Working group. Journal of the American College of Cardiology. 47, 2006 February.
    • or the care of adults with congenital heart disease. Journal of the American College of Cardiology. 37(5):1183-7, 2001 Apr.

    • Landzberg MJ. Murphy DJ Jr. Davidson WR Jr. et.al. Task force 4: organization of delivery systems for adults with congenital heart disease. Journal of the American College of Cardiology. 37(5):1187-93, 2001 Apr.
    • Skorton DJ. Garson A Jr. Allen HD. Fox JM. Truesdell SC. Webb GD. Williams RG. Task force 5: adults with congenital heart disease: access to care. Journal of the American College of Cardiology. 37(5):1193-8, 2001 Apr.
    • Child JS. Freed MD. Mavroudis C. Moodie DS. Tucker AL. Task force 9: training in the care of adult patients with congenital heart disease. Journal of the American College of Cardiology .51(3):389-93, 2008 Jan 22.
  • Webb CL. Jenkins KJ. Karpawich PP. Bolger AF. Donner RM. Allen HD. Barst RJ. Congenital Cardiac Defects Committee of the American Heart Association Section on Cardiovascular Disease in the Young. Collaborative care for adults with congenital heart disease. Circulation. 105(19):2318-23, 2002 May 14.
  • Britain
    • Report of the British Cardiac Society Working Party. Grown-up congenital heart (GUCH) disease: current needs and provision of service for adolescents and adults with congenital heart disease in the UK. Heart (British Cardiac Society). 88 Suppl 1:i1-14, 2002 Sep.
  • Canada
    • Therrien J. Dore A. Gersony W. et al.. Canadian Cardiovascular Society. CCS Consensus Conference 2001 update: recommendations for the management of adults with congenital heart disease. Part I. Canadian Journal of Cardiology. 17(9):940-59, 2001 Sep.
    • Therrien J. Gatzoulis M. Graham T. et. al. Canadian Cardiovascular Society Consensus Conference 2001 update: Recommendations for the Management of Adults with Congenital Heart Disease–Part II. Canadian Journal of Cardiology. 17(10):1029-50, 2001 Oct.
    • Therrien J. Warnes C. Daliento L. et. al. Canadian Cardiovascular Society Consensus Conference 2001 update: recommendations for the management of adults with congenital heart disease part III. Canadian Journal of Cardiology. 17(11):1135-58, 2001 Nov.
  • Europe
    • Deanfield J. Thaulow E. Warnes C. et.al. Task Force on the Management of Grown Up Congenital Heart Disease, European Society of Cardiology. ESC Committee for Practice Guidelines. Management of grown up congenital heart disease. European Heart Journal. 24(11):1035-84, 2003 Jun.
  • Medical Issues

    • Bacterial Endocarditis

      For additional literature about bacterial endocarditis from the last 5 year, click here.

      • Alphonso N. Dhital K. Chambers J. Shabbo F. Gerbode’s defect resulting from infective endocarditis. European Journal of Cardio-Thoracic Surgery. 23(5):844-6, 2003 May.
      • Ando M. Sakai A. Nakamura K. Iwata Y. Sanae T. Infective endocarditis affecting both systemic and pulmonary circulations predisposed by a ventricular septal defect. Japanese Journal of Thoracic & Cardiovascular Surgery. 48(7):451-4, 2000 Jul.
      • Bulat DC. Kantoch MJ. How much do parents know about their children’s heart condition and prophylaxis against endocarditis?. Canadian Journal of Cardiology. 19(5):501-6, 2003 Apr.
      • Diab KA. Richani R. Al Kutoubi A. Mikati M. Dbaibo GS. Bitar FF. Cerebral mycotic aneurysm in a child with Down’s syndrome: a unique association. Journal of Child Neurology. 16(11):868-70, 2001 Nov.
      • Dodo H. Child JS. Infective endocarditis in congenital heart disease. Cardiology Clinics. 14(3):383-92, 1996 Aug.
      • Gowda RM. Ansari AW. Khan IA. Complete endocardial cushion defect (complete atrioventricular canal) manifested in adult life by Streptococcus mitis endocarditis of the common atrioventricular valve. International Journal of Cardiology. 89(1):109-10, 2003 May.
      • He QC. Wang YQ. Zhong BT. Chen ZL. Guo JG. Ye WW. Right ventricular and septal anomalies complicated by subacute bacterial endocarditis. Texas Heart Institute Journal. 27(4):401-4, 2000.
      • Knirsch W. Haas NA. Uhlemann F. Dietz K. Lange PE. Clinical course and complications of infective endocarditis in patients growing up with congenital heart disease. International Journal of Cardiology. 101(2):285-91, 2005 May 25.
      • Knirsch W. Hassberg D. Beyer A. Teufel T. Pees C. Uhlemann F. Lange PE. Knowledge, compliance and practice of antibiotic endocarditis prophylaxis of patients with congenital heart disease. Pediatric Cardiology. 24(4):344-9, 2003 Jul-Aug.
      • Kohli V. Infective endocarditis. Indian Journal of Pediatrics. 69(4):333-9, 2002 Apr.
      • Li W. Somerville J. Infective endocarditis in the grown-up congenital heart (GUCH) population. European Heart Journal. 19(1):166-73, 1998 Jan.
      • Morris CD. Reller MD. Menashe VD. Thirty-year incidence of infective endocarditis after surgery for congenital heart defect. JAMA. 279(8):599-603, 1998 Feb 25.
      • Niwa K. Nakazawa M. Miyatake K. Tateno S. Yoshinaga M. Japanese Circulation Society (JCS) Joint Working Groups for Guidelines for Management of Infective Endocarditis. Japanese Society of Pediatric Cardiology and Cardiac Surgery Joint Working Groups for Guidelines for Prophylaxix, Diagnosis and Management of Infective Endocarditis in Patients with Congenital Heart Disease. Survey of prophylaxis and management of infective endocarditis in patients with congenital heart disease: Japanese nationwide survey. Circulation Journal. 67(7):585-91, 2003 Jul.
      • Ochsenfahrt C. Friedl R. Hannekum A. Schumacher BA. Endocarditis after nipple piercing in a patient with a bicuspid aortic valve. Annals of Thoracic Surgery. 71(4):1365-6, 2001 Apr.
      • Spyridopoulos I. Helber U. Mewis C. Voelker W. Steinhilber B. Schulze HJ. Huppert P. Hoffmeister HM. Tricuspid valve endocarditis due to a jet lesion detected by echocardiography in a 27-year old man with congenital ventricular septal defect. Journal of Cardiovascular Surgery. 37(5):517-20, 1996 Oct.
    • Selected References on Medical Issues

      For additional literature about medical issues from the last 5 years, click here.

      • Alderman LM. At risk: adolescents and adults with congenital heart disease. DCCN – Dimensions of Critical Care Nursing. 19(1):2-12; quiz 13-4, 2000 Jan-Feb.
      • Alvarez N. Prieur T. Connelly M. The ten most commonly asked questions about management of congenital heart disease in adults. Cardiology in Review. 10(2):77-81, 2002 Mar-Apr.
      • Artis S, Ramirez, MJ. Ferencz, C. The social fate of the cardiac child. Cardiac Rehabilitation. 4(4): 67-70, 1974 Winter.
      • Canobbio MM. Issues in the care of adults with congenital heart disease. Nursing Clinics of North America. 29(2):xi-366, 1994 Jun.
      • Canobbio MM. Day MJ. The role of the clinical specialists in an adult congenital heart disease program. Nursing Clinics of North America. 29(2):357-66, 1994 Jun.
      • Daebritz SH. Update in adult congenital cardiac surgery. Pediatric Cardiology. 28(2):96-104, 2007 Mar-Apr.
      • Diller GP. Dimopoulos K. Okonko D. et. al. Exercise intolerance in adult congenital heart disease: comparative severity, correlates, and prognostic implication. Circulation. 112(6):828-35, 2005 Aug 9.
      • Garson A Jr. Health care policy for adults with congenital heart disease. The patient, the physician, and society. Circulation. 86(3):1030-2, 1992 Sep.
      • Gatzoulis MA. Adult congenital heart disease: education, education, education. Nature Clinical Practice Cardiovascular Medicine. 3(1):2-3, 2006 Jan.
      • Green A. Outcomes of congenital heart disease: a review. Pediatric Nursing. 30(4):280-4, 2004 Jul-Aug.
      • Kamphuis M, Vliegen HW, Vogels T, et al. The need for cardiac follow-up in adults with mild congenital cardiac disease Cardiology in the Young. 12 (5): 474-478, Oct 2002.
      • Kools S. Tong EM. Hughes R. et.al. Hospital experiences of young adults with congenital heart disease: divergence in expectations and dissonance in care. American Journal of Critical Care. 11(2):115-25; quiz 126-7, 2002 Mar.
      • Koster NK. Physical activity and congenital heart disease. Nursing Clinics of North America. 29(2):345-56, 1994 Jun.
      • Kovach JA. Preventive and primary care of the adult with congenital heart disease. ACC Current Journal Review. 10(4):94-8, 2001 Jul-Aug.
      • Lip GYH, Lane DA, Millane TA, Tayebjee MH. Psychological interventions for depression in adolescent and adult congenital heart disease. The Cochrane Database of Systematic Reviews 2002, Issue 4. Art. No.: CD004372. DOI: 10.1002/14651858.CD004372.
      • Miner PD. Canobbio MM. Care of the adult with cyanotic congenital heart disease. Nursing Clinics of North America. 29(2):249-67, 1994 Jun. (33 ref)
      • Ruiz G. The search for adults with congenital heart disease. Cardiology. 35(4): 2006.
      • Skorton DJ. Garson A Jr. Training in the care of adult patients with congenital heart disease. Cardiology Clinics. 11(4):717-20, 1993 Nov.
      • Somerville J. Grown-up congenital heart disease–medical demands look back, look forward 2000. Thoracic & Cardiovascular Surgeon. 49(1):21-6, 2001 Feb.
      • Somerville J. Management of adults with congenital heart disease: an increasing problem. Annual Review of Medicine. 48:283-93, 1997.
      • Somerville J. Near misses and disasters in the treatment of grown-up congenital heart patients. Journal of the Royal Society of Medicine. 90(3):124-7, 1997 Mar.
      • Therrien J. Webb G.Clinical update on adults with congenital heart disease. Lancet. 362(9392):1305-13, 2003 Oct 18.
      • Thompson L. Care of the patient with adult congenital heart disease.Critical Care Nursing Quarterly. 30(1):3-11, 2007 Jan-Mar.
      • Tong EM, Sparacino PSA, Messias DKH, et al. Growing up with congenital heart disease: the dilemmas of adolescents and young adults. Cardiology in the Young 8 (3): 303-309, 1998 Jul.
      • Vida VL. Berggren H. Brawn WJ. Daenen W. Di Carlo D. Di Donato R. Lindberg HL. Corno AF. Fragata J. Elliott MJ. Hraska V. Kiraly L. Lacour-Gayet F. Maruszewski B. Rubay J. Sairanen H. Sarris G. Urban A. Van Doorn C. Ziemer G. Stellin G. Risk of surgery for congenital heart disease in the adult: a multicentered European study. Annals of Thoracic Surgery. 83(1):161-8, 2007 Jan.
      • Warnes, C.A. The adult with congenital heart disease. Journal of the American College of Cardiology 46(1):1-8, 2005 July.
      • Webb G. Improving the care of Canadian adults with congenital heart disease. Canadian Journal of Cardiology. 21(10):833-8, 2005 Aug.
      • Webb GD. Challenges in the care of adult patients with congenital heart defects. Heart (British Cardiac Society). 89(4):465-9, 2003 Apr.
      • Webb GD. The Edgar Mannheimer Lecture. Improving the care of patients with congenital heart disease: an adult focus. Cardiology in the Young. 14(1):6-14, 2004 Feb.
      • Wren C. O’Sullivan JJ. Survival with congenital heart disease and need for follow up in adult life. Heart (British Cardiac Society). 85(4):438-43, 2001 Apr.

    Reproductive Care/Recurrence in Offspring

    For additional literature about reproductive care/recurrence in offspring from the last 5 years, click here.

    • Baumgartner H. Reproductive issues in adults with congenital heart disease: arrhythmias during pregnancy: importance, diagnosis and therapy. Thoracic & Cardiovascular Surgeon. 49(2):94-7, 2001 Apr.
    • Canobbio MM. Reproductive issues for the woman with congenital heart disease. Nursing Clinics of North America. 29(2):285-97, 1994 Jun.
    • Colman JM. Sermer M. Seaward PG. Siu SC. Congenital heart disease in pregnancy. Cardiology in Review. 8(3):166-73, 2000 May-Jun.
    • Earing MG. Webb GD. Congenital heart disease and pregnancy: maternal and fetal risks. Clinics in Perinatology. 32(4):913-9, viii-ix, 2005 Dec.
    • Gei AF. Hankins GD. Cardiac disease and pregnancy. Obstetrics & Gynecology Clinics of North America. 28(3):465-512, 2001 Sep.
    • Kaemmerer H. Bauer U. Stein JI. et.al. Pregnancy in congenital cardiac disease: an increasing challenge for cardiologists and obstetricians — a prospective multicenter study. Zeitschrift fur Kardiologie. 92(1):16-23, 2003 Jan.
    • Kaemmerer H, Schneider KTM, Niesert S, et al. Pregnancy in women with congenital heart defects. Gynakologe 32 (5): 377-385 May 1999.
    • Mendelson MA. Congenital cardiac disease and pregnancy. Clinics in Perinatology. 24(2):467-82, 1997 Jun.
    • Ramsey PS. Ramin KD. Ramin SM. Cardiac disease in pregnancy. American Journal of Perinatology. 18(5):245-66, 2001 Aug.
    • Rogers P. Mansour D. Mattinson A. O’Sullivan JJ. A collaborative clinic between contraception and sexual health services and an adult congenital heart disease clinic.Journal of Family Planning & Reproductive Health Care. 33(1):17-21, 2007 Jan.
    • Rose V. Gold RJ. Lindsay G. Allen M. A possible increase in the incidence of congenital heart defects among the offspring of affected parents. Journal of the American College of Cardiology. 6(2):376-82, 1985 Aug.
    • Sawhney H. Suri V. Vasishta K. Gupta N. Devi K. Grover A. Pregnancy and congenital heart disease–maternal and fetal outcome. Australian & New Zealand Journal of Obstetrics & Gynaecology. 38(3):266-71, 1998 Aug.
    • Siu S. Chitayat D. Webb G. Pregnancy in women with congenital heart defects: what are the risks?. Heart (British Cardiac Society). 81(3):225-6, 1999 Mar.
    • Siu SC. Colman JM. Heart disease and pregnancy. Heart (British Cardiac Society). 85(6):710-5, 2001 Jun.
    • Siu SC. Colman JM. Sorensen S. et.al. Adverse neonatal and cardiac outcomes are more common in pregnant women with cardiac disease. Circulation. 105(18):2179-84, 2002 May 7.
    • Siu SC. Sermer M. Harrison DA. et.al. Risk and predictors for pregnancy-related complications in women with heart disease. Circulation. 96(9):2789-94, 1997 Nov 4.
    • Siu SC. Sermer M. Colman JM. et.al. Prospective multicenter study of pregnancy outcomes in women with heart disease. Circulation. 104(5):515-21, 2001 Jul 31.
    • Swan L. Lupton, M. Anthony J. et. al. Controversies in pregnancy and congenital heart disease. Congenital Heart Disease. 1(1-2):27-34, 2006 Jan.-Apr.
    • Uebing A. Steer PJ. Yentis SM. Gatzoulis MA. Pregnancy and congenital heart disease. BMJ. 332(7538):401-6, 2006 Feb 18.
    • Whittemore R. Maternal transmission of congenital heart disease. American Journal of Cardiology. 61(6):499-500, 1988 Feb 15.
    • Whittemore R. Wells JA. Castellsague X. A second-generation study of 427 probands with congenital heart defects and their 837 children. Journal of the American College of Cardiology. 23(6):1459-67, 1994 May.
    • Zuber M. Gautschi N. Oechslin E. Widmer V. Kiowski W. Jenni R. Outcome of pregnancy in women with congenital shunt lesions. Heart (British Cardiac Society). 81(3):271-5, 1999 Mar.

    Insurance

    For additional literature about insurance from the last 5 years, click here.

    • Celermajer DS, Deanfield JE. Employment and insurance for young-adults with congenital heart diesease. British Heart Journal 69 (6): 539-543, 1993 Jun.
    • Crossland DS, Jackson SP, Lyall R, et.al. Life insurance and mortgage application in adults with congenital heart disease. European Journal of Cardiothorac Surgery. 25(6):931-4, 2004 Jun.
    • Cumming GR. Life insurance implications of mortality for up to 40 years after repair of congenital heart defects in childhood. Journal of the Royal Society of Medicine. 92(2):73-8, 1999 Feb.
    • Day MJ. Educational assessment of the adult with congenital heart disease. Nursing Clinics of North America. 29(2):299-318, 1994 Jun.
    • Garson A. President’s page: Health care coverage for adults with congenital heart disease: Strong, steady steps. Journal of the American College of Cardiology 35 (1): 255-256, 2000 Jan.
    • Hart EM. Garson A Jr. Psychosocial concerns of adults with congenital heart disease. Employability and insurability. Cardiology Clinics. 11(4):711-5, 1993 Nov.
    • Hellstedt LF. Insurability issues facing the adolescent and adult with congenital heart disease. Nursing Clinics of North America. 29(2):331-43, 2004 Jun.
    • Kamphuis M, Vogels T, Ottenkamp J, et al. Employment in adults with congenital heart disease Arch Pediat Adol Med 156 (11): 1143-1148, 2002 Nov.
    • McGrath KA. Truesdell SC. Employability and career counseling for adolescents and adults with congenital heart disease. Nursing Clinics of North America. 29(2):319-30, 1994 Jun.
    • Muhll IV. Cumming G. Gatzoulis MA. Risky business: insuring adults with congenital heart disease. European Heart Journal. 24(17):1595-600, 2003 Sep.
    • Nieminen H. Sairanen H. Tikanoja T. et.al. Long-term results of pediatric cardiac surgery in Finland: education, employment, marital status, and parenthood. Pediatrics. 112(6 Pt 1):1345-50, 2003 Dec.
    • White PH. Access to health care: health insurance considerations for young adults with special health care needs/disabilities. Pediatrics. 110(6 Pt 2):1328-35, 2002 Dec

    Quality of Life

    For additional literature about quality of life from the last 5 years, click here.

    • Bromberg JI. Beasley PJ. D’Angelo EJ. et. al. Depression and anxiety in adults with congenital heart disease: a pilot study. Heart and Lung: Journal of Acute and Critical Care. 32(2):105-10, 2003 Mar-Apr.
    • Claessens P. Moons P. de Casterle BD. Cannaerts N. Budts W. Gewillig M. What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients. European Journal of Cardiovascular Nursing. 4(1):3-10, 2005 Mar.
    • Cox D, Lewis G, Stuart G, et al. A cross-sectional study of the prevalence of psychopathology in adults with congenital heart disease Journal of Psychosomatic Research 52 (2):5-68, 2002 Feb.
    • Crossland DS. Jackson SP. Lyall R. Burn J. O’Sullivan JJ. Employment and advice regarding careers for adults with congenital heart disease. Cardiology in the Young. 15(4):391-5, 2005 Aug.
    • Daliento L. Mapelli D. Russo G. Scarso P. Limongi F. Iannizzi P. Melendugno A. Mazzotti E. Volpe B. Health related quality of life in adults with repaired tetralogy of Fallot: psychosocial and cognitive outcomes. Heart. 91(2):213-8, 2005 Feb.
    • Daliento L. Mapelli D. Volpe B. Measurement of cognitive outcome and quality of life in congenital heart disease. Heart. 92(4):569-74, 2006 Apr.
    • Fekkes M, Kamphuis RP, Ottenkamp J, et al. Health-related quality of life in young adults with minor congenital heart disease Psychol Health 16 (2):239-50 2001.
    • Ferencz, C. Preventive Habilitation of Cardiac Children. In: Kidd BSL and Rowe RD (eds). The Child with Congenital Heart Disease after Surgery. Futura Publishing Co. 1976.
    • Hager A. Hess J. Comparison of health related quality of life with cardiopulmonary exercise testing in adolescents and adults with congenital heart disease. Heart. 91(4):517-20, 2005 Apr.
    • Higgins SS. Reid A. Common congenital heart defects: long-term follow-up. Nursing Clinics of North America. 29(2):233-48, 1994 Jun.
    • Higgins SS. Long-term follow-up of the postoperative patient with congenital heart disease: general concerns. Nursing Clinics of North America. 29(2):221-31, 1994 Jun.
    • Horner T, Liberthson R, Jellinek MS. Psychosocial profile of adults with complex congenital heart disease. Mayo Clin Proc 75 (1): 31-36, 2000 Jan.
    • Jefferies JL, Noonan JA, Keller BB, et.al. Quality of life and social outcomes in adults with congenital heart disease living in rural areas of Kentucky. American Journal of Cardiology. 15;94(2):263-6, 2004 Jul.
    • Kaden GG. McCarter RJ. Johnson SF. Ferencz C. Physician-patient communication. Understanding congenital heart disease. American Journal of Diseases of Children. 139(10):995-9, 1985 Oct
    • Kamphuis M. Ottenkamp J. Vliegen HW. et.al. Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart (British Cardiac Society). 87(4):356-62, 2002 Apr.
    • Kamphuis M. Zwinderman KH. Vogels T. et.al. A cardiac-specific health-related quality of life module for young adults with congenital heart disease: development and validation. Quality of Life Research. 13(4):735-45, 2004 May.
    • Kokkonen J. Paavilainen T. Social adaptation of young adults with congenital heart disease. International Journal of Cardiology. 36(1):23-9, 1992 Jul.
    • Kovacs AH. Sears SF. Saidi AS. Biopsychosocial experiences of adults with congenital heart disease: review of the literature. American Heart Journal. 150(2):193-201, 2005 Aug.
    • Lane DA. Lip GY. Millane TA. Quality of life in adults with congenital heart disease. Heart (British Cardiac Society). 88(1):71-5, 2002 Jul.
    • Lip GY. Lane DA. Millane TA. et. al. Psychological interventions for depression in adolescent and adult congenital heart disease. Cochrane Database of Systematic Reviews. (3):CD004394,
      2003.
    • Moons P. Van Deyk K. De Geest S. Gewillig M. Budts W. Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart. 91(9):1193-8, 2005 Sep.
    • Moons P. Van Deyk K. Marquet K. Raes E. De Bleser L. Budts W. De Geest S. Individual quality of life in adults with congenital heart disease: a paradigm shift. European Heart Journal. 26(3):298-307, 2005 Feb.
    • Rietveld S, Mulder BJM, van Beest I, et al. Negative thoughts in adults with congenital heart disease. Int J Cardiol 86 (1): 19-26, 2002 Nov.
    • Roos-Hesselink JW. Meijboom FJ. Spitaels SE. Van Domburg R. Van Rijen EH. Utens EM. Bogers AJ. Simoons ML. Outcome of patients after surgical closure of ventricular septal defect at young age: longitudinal follow-up of 22-34 years. European Heart Journal. 25(12):1057-62, 2004 Jun.
    • Rose M. Kohler K. Kohler F. Sawitzky B. Fliege H. Klapp BF. Determinants of the quality of life of patients with congenital heart disease. Quality of Life Research. 14(1):35-43, 2005 Feb.
    • Saliba Z, Butera G, Bonnet D, et al. Quality of life and perceived health status in surviving adults with univentricular heart. Heart 86 (1): 69-73, 2001 Jul.
    • Simko LC. McGinnis KA. Quality of life experienced by adults with congenital heart disease. AACN Clinical Issues. 14(1):42-53, 2003 Feb.
    • Tayebjee MH. Lip GY. Psychosocial functioning of adults with congenital heart disease: a neglected area. European Heart Journal. 24(23):2159; author reply 2159-60, 2003 Dec.
    • Utens EM. Bieman HJ. Verhulst FC. Meijboom FJ. Erdman RA. Hess J. Psychopathology in young adults with congenital heart disease. Follow-up results. European Heart Journal. 19(4):647-51, 1998 Apr.
    • Utens EM. Verhulst FC. Erdman RA. Meijboom FJ. Duivenvoorden HJ. Bos E. Roelandt JR. Hess J. Psychosocial functioning of young adults after surgical correction for congenital heart disease in childhood: a follow-up study. Journal of Psychosomatic Research. 38(7):745-58, 1994 Oct.
    • Van Rijen EH. Utens EM. Roos-Hesselink JW. Meijboom FJ. van Domburg RT. Roelandt JR. Bogers AJ. Verhulst FC. Current subjective state of health, and longitudinal psychological well-being over a period of 10 years, in a cohort of adults with congenital cardiac disease. Cardiology in the Young. 15(2):168-75, 2005 Apr.
    • Van Rijen EH. Utens EM. Roos-Hesselink JW. Meijboom FJ. van Domburg RT. Roelandt JR. Bogers AJ. Verhulst FC. Longitudinal development of psychopathology in an adult congenital heart disease cohort. International Journal of Cardiology. 99(2):315-23, 2005 Mar 18.
    • Van Rijen EH. Utens EM. Roos-Hesselink JW. Meijboom FJ. van Domburg RT. Roelandt JR. Bogers AJ. Verhulst FC. Medical predictors for psychopathology in adults with operated congenital heart disease. European Heart Journal. 25(18):1605-13, 2004 Sep.
    • Van Rijen EH. Utens EM. Roos-Hesselink JW. et. al. Psychosocial functioning of the adult with congenital heart disease: a 20-33 years follow-up. European Heart Journal. 24(7):673-83, 2003 Apr.
    • Van Rijen EH. Utens EM. Roos-Hesselink JW. Meijboom FJ. van Domburg RT. Roelandt JR. Bogers AJ. Verhulst FC. Styles of coping and social support in a cohort of adults with congenital heart disease. Cardiology in the Young. 14(2):122-30, 2004 Apr.