Infant Survival

For additional literature about infant survival from the last 5 years, click here.

  • Abdulla RI Congenital heart disease management in developing countries. Pediatric Cardiology. 23(5):481-2, 2002 Sep-Oct.
  • Brick DH. Allan LD. Outcome of prenatally diagnosed congenital heart disease: an update. Pediatric Cardiology. 23(4):449-53, 2002 Jul-Aug.
  • Giamberti A. Mele M. Di Terlizzi M. Abella R. Carminati M. Cirri S. Frigiola A. Association of Children with Heart Disease in the World: 10-year experience. Pediatric Cardiology. 25(5):492-4, 2004 Sep-Oct.
  • Halnon NJ. Wetzel GT. Implications of improving survival in the management of life-threatening congenital heart disease: new challenges in pediatric cardiology. Current Opinion in Cardiology. 17(3):271-3, 2002 May.
  • Rowe RD, Freedom, RM, Mehrizi, A. The Neonate with Congenital Heart Disease. Second Edition, WB Saunders CO. Philadelphia, PA. 1981.
  • Sullivan ID. Prenatal diagnosis of structural heart disease: does it make a difference to survival?. Archives of Disease in Childhood Fetal & Neonatal Edition. 87(1):F19-20, 2002 Jul.

Developmental Assessment

For additional literature about developmental assessment from the last 5 years, click here.

  • Alden B. Gilljam T. Gillberg C. Long-term psychological outcome of children after surgery for transposition of the great arteries. Acta Paediatrica. 87(4):405-10, 1998 Apr.
  • Ellerbeck KA. Smith ML. Holden EW. Neurodevelopmental outcomes in children surviving d-transposition of the great arteries. Journal of Developmental & Behavioral Pediatrics. 19(5):335-41, 1998 Oct.
  • Limperopoulos C. Majnemer A. Shevell MI. Functional limitations in young children with congenital heart defects after cardiac surgery. Pediatrics. 108(6):1325-31, 2001 Dec.
  • Limperopoulos C. Majnemer A. Shevell MI. et. al. Neurodevelopmental status of newborns and infants with congenital heart defects before and after open heart surgery. Journal of Pediatrics. 137(5):638-45, 2000 Nov.
  • Limperopoulos C. Majnemer A. Shevell MI. Neurologic status of newborns with congenital heart defects before open heart surgery. Pediatrics. 103(2):402-8, 1999 Feb.
  • Limperopoulos C. Majnemer A. Shevell MI. Predictors of developmental disabilities after open heart surgery in young children with congenital heart defects. Journal of Pediatrics. 141(1):51-8, 2002 Jul.
  • Majnemer A. Limperopoulos C. Developmental progress of children with congenital heart defects requiring open heart surgery. Seminars in Pediatric Neurology. 6(1):12-9, 1999 Mar.
  • Samango-Sprouse C. Suddaby EC. Developmental concerns in children with congenital heart disease. Opinion in Cardiology. 12(1):91-8, 1997 Jan.

Patient Knowledge

For additional literature about patient knowledge from the last 5 years, click here.

  • Artis S, Ramirez, MJ. Ferencz, C. The social fate of the cardiac child. Cardiac Rehabilitation. 4(4): 67-70, 1974 Winter.
  • Chessa M. De Rosa G. Pardeo M. Negura GD. Butera G. Feslova V. Piazza L. Giamberti A. Bossone E. Carminati M. Illness understanding in adults with congenital heart disease. Italian Heart Journal: Official Journal of the Italian Federation of Cardiology. 6(11):895-9, 2005 Nov.
  • Dore A. de Guise P. Mercier LA. Transition of care to adult congenital heart centres: what do patients know about their heart condition?. Canadian Journal of Cardiology. 18(2):141-6, 2002 Feb.
  • Ferencz C. Wiegmann FL Jr. Dunning RE. Medical knowledge of young persons with heart disease. Journal of School Health. 50(3):133-6, 1980 Mar.
  • Kamphuis M. Verloove-Vanhorick SP. Vogels T. Ottenkamp J. Vliegen HW. Disease-related difficulties and satisfaction with level of knowledge in adults with mild or complex congenital heart disease. Cardiology in the Young. 12(3):266-71, 2002 May.
  • Kantoch MJ. Collins-Nakai RL. Medwid S. Ungstad E. Taylor DA. Adult patients’ knowledge about their congenital heart disease. Canadian Journal of Cardiology. 13(7):641-5, 1997 Jul.
  • Kendall L. Lewin RJ. Parsons JM. Factors associated with self-perceived state of health in adolescents with congenital cardiac disease attending paediatric cardiologic clinics. Cardiology in the Young. 11(4):431-8, 2001 Jul
  • Lunt D. Briffa T. Briffa NK. et. al. Physical activity levels of adolescents with congenital heart disease. Australian Journal of Physiotherapy. 49(1):43-50, 2003.
  • Moons P, De Volder E, Budts W, et al. What do adult patients with congenital heart disease know about their disease, treatment, and prevention of complications? A call for structured patient education. Heart 86 (1): 74-80, 2001 Jul.
  • Tong EM. Sparacino PS. Messias DK. Growing up with congenital heart disease: the dilemmas of adolescents and young adults. Cardiology in the Young. 8(3):303-9, 1998 Jul.

Preparation for Adult Health Care

For additional literature about preparation for adult health care from the last 5 years, click here.

  • Callahan ST. Winitzer RF. Keenan P. Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease. Current Opinion in Pediatrics. 13(4):310-6, 2001 Aug.
  • Canobbio MM. Health care issues facing adolescents with congenital heart disease. Journal of Pediatric Nursing. 16(5):363-70, 2001 Oct.
  • Doroshow RW. The adolescent with simple or corrected congenital heart disease. Adolescent Medicine State of the Art Reviews. 12(1):1-22, 2001 Feb.
  • Higgins SS. Tong E.Transitioning adolescents with congenital heart disease into adult health care. Progress in Cardiovascular Nursing. 18(2):93-8, 2003 Spring.
  • Hudsmith LE. Thorne SA. Transition of care from paediatric to adult services in cardiology. Archives of Disease in Childhood. 92(10):927-30, 2007 Oct.
  • Hunter S. Congenital heart disease in adolescence. Journal of the Royal College of Physicians of London. 34(2):150-2, 2000 Mar-Apr.
  • Lip GY. Lane DA. Millane TA. et. al. Psychological interventions for depression in adolescent and adult congenital heart disease. Cochrane Database of Systematic Reviews. (3):CD004394,
  • Reid GJ. Irvine MJ. McCrindle al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics. 113(3 Pt 1):e197-205, 2004 Mar.
  • Rosenkranz ER. Caring for the former pediatric cardiac surgery patient. Pediatric Clinics of North America. 45(4):907-41, 1998 Aug.