• Adult Congenital Heart Association
    The purpose of this organization is to educate the public, adults with CHD, and the medical community about adult congenital heart issues through the development of forums, newsletters, support groups and other methods of public information.
  • Canadian Adult Congenital Heart (CACH) Network
    CanadaCACHNET.ORG is home to the Canadian Adult Congenital Heart Network and the Toronto Congenital Cardiac Centre For Adults at the University of Toronto. Their aim is to provide comprehensive care and information to adult patients with congenital heart disease and their care providers.
  • Congenital Heart Information Network (CHIN)
    C.H.I.N. is an international organization that provides reliable information, support services and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them.
  • International Society for Adult Congenital Heart Disease
    The International Society for Adult Congenital Cardiac Disease seeks to promote, maintain and pursue excellence in the care of adolescents and adults with congenital cardiac disease.The Society is dedicated to the advancement of knowledge and training in medical disciplines pertinent to congenital heart disease in adults.Membership is open to health professionals interested in furthering the objectives of the Society, and who are involved in the care of adults or adolescent patients with congenital heart disease.
  • The Somerville Foundation – United Kingdom
    The aims of the Foundation are 1) to provide all Grown UP Congenital Heart (GUCH) patients with accurate, timely information and advice, to allow them to grasp opportunities, take informed decisions and make lifestyle choices 2) To combat isolation and poverty 3) To fight discrimination through campaigns, education and promoting GUCHs rights and 4) To enable GUCHs to share and learn from experiences and support each other.