{"id":2856,"date":"2017-09-21T15:45:38","date_gmt":"2017-09-21T19:45:38","guid":{"rendered":"http:\/\/www2.hshsl.umaryland.edu\/hslupdates\/?p=2856"},"modified":"2017-09-21T15:45:38","modified_gmt":"2017-09-21T19:45:38","slug":"nih-request-for-information-seeks-opinions-on-child-enrollment-in-the-all-of-us-research-program","status":"publish","type":"post","link":"https:\/\/www2.hshsl.umaryland.edu\/hslupdates\/?p=2856","title":{"rendered":"NIH Request For Information – Seeks Opinions On Child Enrollment in the All of Us Research Program"},"content":{"rendered":"

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You have until Sept 22 to respond to the RFI \u00a0to Inform Plans for Child Enrollment<\/strong> in the All of Us<\/em> Research Program<\/a>. \u00a0Responses should be submitted to this web form<\/a>.<\/p>\n

The\u00a0All of Us<\/em>\u00a0Research Program is an historic effort to gather data from one million or more people living in the United States to accelerate research and improve health. The enrollment of children in the cohort has consistently been an important goal of the program: the\u00a0Advisory Committee to the NIH Director (ACD) Precision Medicine Initiative Working Group<\/a>, which developed the\u00a0final report<\/a>\u00a0that informs the\u00a0All of Us<\/em>\u00a0Research Program, strongly supported the inclusion of children in the cohort, recommending that the NIH work thoughtfully and carefully to \u201cdevelop specific approaches to address the needs of [children] so that they may be included and retained in the cohort.\u201d\u00a0 The efforts of the Child Enrollment Scientific Vision Working Group<\/a> (CESVWG), and this RFI, are key to the program\u2019s efforts to develop a thoughtful and appropriate plan for the addition of children to the program.<\/p>\n

The\u00a0CESVWG seeks public input on the pediatric research that the\u00a0All of Us<\/em>\u00a0Research Program may be uniquely positioned to enable through the enrollment of children.\u00a0Responses should include:<\/p>\n